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Home Care Services

Choosing a qualified, professional home health care service can be a challenge unless people look for the proper credentials. Further, the services can be expensive. In some cases, government aid and other forms of assistance can help make this service a viable option for adults who wish to remain independent, or for parents of children who require assistance caring for their child. Home health care for children with cerebral palsy varies with need. Several individuals may regularly visit members of a household to assist with tasks.


In-home health care for children

The in-home health care team is comprised of health care workers who provide home health care services for children inside the children’s own home. The relationships with the people on the home care team are essential to the health and well-being of not only the child, but the entire family.

Largely dependent upon the severity of the child’s health condition and the demands on the home environment, services exists to assist where and when needed. For some, housecleaning and a weekly visit from the traveling nurse may be sufficient, while others may require in-home, round-the-clock nursing care, or childcare while a parent works. Some health conditions require more service than others.


Who is on the Home Health Care Team?

Several people may become regularly visiting members of a household as they perform care and a variety of supportive tasks. There may be someone in the home helping wash dishes and fold laundry, at the same time as another is helping the child with cerebral palsy perform prescribed range-of-motion exercises. The school may periodically send a speech and language pathologist or therapist to the home when the child is not able to communicate well, or attend school.

A registered dietician may make monthly visits to supervise nutritional programs. A behavioral psychologist may be contracted for a one-time only visit to assist with some social barriers. Assistive technology service providers may evaluate the home and vehicle needs for ways to make the child’s environment more accessible and inclusive.

Home maker and home care aid agencies often provide assistance with common household chores like meal preparation, personal hygiene and housekeeping chores. Some provide support with activities of daily living and companionship.

Other providers require specialized knowledge to assist with a technical aspects of specialized care. For instance, individuals reliant on respirators, feeding tubes, catheters, or drug therapy infusion devices may require training, supplies and monitoring services from pharmaceutical companies or equipment providers.

Some services provided through home health care services providers include:

  • Companions
  • Dental care
  • Dieticians
  • Home Health Aides (HCAs)
  • Homemaker and chore workers
  • Licensed practical nurses (LPNs)
  • Medical care
  • Nutritionists
  • Occupational therapists
  • Optical care providers
  • Pharmaceutical company representatives
  • Physical therapists
  • Physicians
  • Podiatrists
  • Registered nurses (RNs)
  • Respiratory therapists
  • Social workers
  • Speech and language pathologists
  • Volunteers
  • X-ray technicians

Home health care services are delivered in the comfort of the child’s home. They encompass medical assistance, nursing care, social services, therapeutic treatment, assistive technology and assistance with the essential activities of daily living. Often these are services that cannot be solely provided by family members or designated caretakers.

Home care services are usually contracted through home care organizations, private registries, or independent providers. They may include:

  • Drug infusion therapy companies
  • Durable medical equipment and supply dealers
  • Home care aide (HCA) agencies
  • Home health agencies
  • Homemaker services
  • Hospice
  • Durable medical equipment and supply dealers
  • Pharmaceutical companies
  • Staffing and private-duty agencies

The services may be provided by one individual or a team of medical specialists. They work part-time, full-time, contract, intermittent, hourly or by shift. Care must be administered efficiently under the guise of a comprehensive, coordinated health care team leader.

Some of these services are provided through government assistance, while many fall under the child’s special education needs as evaluated by the Individualized Education Plan and funded through state and national government initiatives while the child is still school-aged. There are also services recommended by the health care providers which can be obtained with the assistance of the child’s health insurance. Community groups have access to resources which they lend, fund raise for, or provide to those in need.

There are many opportunities and also barriers to obtaining home health care services. Access to these services may depend on program guidelines, health insurance provisions, financial need, and more. Some families experience high turnover in personnel required. Some programs require the home health care service provider to be Medicare certified, for example. If so, regulatory guidelines require these individuals and providers to be highly supervised and controlled.



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Child Care

Finding a child care program or facility that meets the needs of a child with cerebral palsy is an expensive undertaking. Luckily, families that meet a certain set of criteria can take advantage of government funding and supports.
Child Care »
Government-Assisted Child Care »

Child Tax Credits

Ask your tax consultant if you are eligible for:

Ask your employer if they offer pre-tax accounts for child and dependent care.



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Government Assistance

Government assistance – also known as public assistance – is aid, service or supports that are provided to an individual by a government agency based on established criteria – income, disability, dependency or need, for example. Government resources come in the form of cash, food, services, shelter, technology, supports, and more.
Government Assistance »



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    About MyChild™ Resources

    Whether helping an adult with cerebral palsy to locate government assistance to providing a parent with a source of inspiration on a difficult day, MyChild™’s team of knowledgeable and caring call center representatives assemble to answer questions and provide support. Additionally, kits of useful information on a variety of important topics commonly requested – such as therapies and community support, or housing and government assistance – are provided, free of charge.
    MyChild™ Resources »

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    About Community Support and Funding

    Organizations within the community exist to support and assist individuals with disabilities. Often, it is just a matter of being aware of what resources are in your community and how to contact them. Learn more about community support in your area.
    Community Support and Funding »


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Information

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Plan for Contingencies

Plan ahead. Prepare for emergencies. Who’s going to care for my child when I’m unable? It’s a question that many parents of children with cerebral palsy struggle with, and one that requires much consideration.
Plan for Contingencies »

Information

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Accept Help

When the needs of caring for a child become emotionally and physically overwhelming, there are a surprising number of people who are able and willing to provide assistance.
Accept Help »

Inspiration

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Aimee's Story: Help from Extended Family

Caring for a child with cerebral palsy is a full-time obligation that can be as overwhelming as it is rewarding. Extended family members can be instrumental in helping to ensure a child’s health, education and safety needs are being met.
Help from Extended Family »

Inspiration

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Accepting Outcomes

When Charlene learned that her daughter had severe cerebral palsy, doctors told her that her daughter would not live long. Three decades later, life has more joy than both Charlene and Shevitta could have predicted.
Accepting Outcomes »

Inspirational Book

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Jimmy's Story:
My Perfect Son

When Marie Kennedy’s son Jimmy was diagnosed with cerebral palsy, she went on an odyssey of information-seeking and soul-searching. Her book offers advice and encouragement to parents experiencing the same situation.
Jimmy's Story: My Perfect Son »

Inspirational Movie

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Daniel's Story:
King Gimp

Academy Award-winning documentary follows the daily life of Dan Keplinger from the ages of 12 to 25 years old, with a special nod to his search for acceptance and development as a sought-after artist.
Daniel's Story: King Gimp »

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